Tomorrow I have my post-op appt and I expect to hear what they have learned from the lab testing of the node biopsy, and what the treatment options are. We’ll ask about oncologists, both at the Fairfax hospital and at Johns Hopkins, and see who Dr. Moynihan recommends. Most of the pain is gone around my lump incision but the one under my arm pit is still uncomfortable, but better since I took the bandage off yesterday. It’s funny how it’s little things that remind me that things are not quite the same – taking a hot shower used to be a highlight of my evening but now I dread it - I have to come up with ways to have the hot water on my back without wetting the incisions; and I don’t enjoy my morning coffee or my daily chocolate snack anymore - instead I wonder if all the not so good stuff I’ve had over the years have contributed to this... Anyway, on to more important things... Today I realized that telling others about my cancer can actually help some others – to not put off their annual pap or to follow up with a lump. It’s actually becoming more difficult to tell people about my cancer though. I think because initially I was in shock myself and needed support, I couldn't stop talking about it… now that I’ve more or less come to terms with it, it seems there is less to say, and it takes more energy to talk about how serious a condition this is... just want to say that we are trusting God through it.
I’ve been reading Dr. Susan Love’s Breast Book, and it’s packed with great information both for those with and without cancer. I think if I’d read this back in April when I had the mammogram, I probably would have pushed to have the lump biopsied. It talks about how if we feel there is something wrong with a lump, despite what the doctor may observe, we should insist on the biopsy. We feel the lump from both inside and out, while they feel the outside. I knew that there was something weird about it – yes, it was round and smooth, which is supposed to indicate a benign lump, but I didn’t feel right, even before it started to grow. The section in the book about interpreting mammograms was also interesting, and I can see how the current debate has led to the opinion that women should not have them regularly. Seems the accuracy of the diagnosis seems to have a lot to do with the experience of the mammographer/radiologist. It was interesting that the author herself said that if the radiologist wasn’t sure after reading a mammogram, and had written to her that a patient's lump “was a possible fibroadenoma, but cancer can’t be ruled out”, she would have had two choices, either wait 6 months and see if it grew, or if the patient were really anxious, have it biopsied. I’ve always been more likely not to want to disagree and to hold in any reservations I have, but in the case of our health, it should not about being polite or agreeable. It came up in conversation with Oni today, how for the doctor we are just another case, but for us, it's about our survival and we need to take more responsibility.
I thank God for another day!
Kule I know today is your busy day...and you are we are all snowed in ...so u likely would not have gone anywhere today...or was it yesterday...for your appt?
ReplyDeleteSo just calling in to say you a little prayer and to give you some tit bits. If you havent yet done so - how do you feel about joining a support group - online is good but one you visit i think may be even better..different level of support but this could be useful in helping with the emotional fight you're gonna need... I will get the breast book..and read alone with you..
www.virginiacancer.com/supportgroups.asp
Hope you have a good night, that the almighty will clear your mind with any worry, or any tear.. or any doubt that he is good and it is his will to do as he pleases.
May you night and day this coming week be void of any cloud that will cast darkness into all you do, but shine light - that each day will step by step - day by day, cell by cell, prayer by prayer, appt by appt,lift you up and heal you in the mighty name of jesus...who heals and answers his children when called...
Nutritions from http://www.medicinenet.com/breast_cancer/page14.htm
You need the right amount of calories to maintain a good weight. You also need enough protein to keep up your strength. Eating well may help you feel better and have more energy.
Sometimes, especially during or soon after treatment, you may not feel like eating. You may be uncomfortable or tired. You may find that foods do not taste as good as they used to. In addition, the side effects of treatment (such as poor appetite, nausea, vomiting, or mouth sores) can make it hard to eat well. Your doctor, dietitian, or other health care provider can suggest ways to deal with these problems.
Many women find they feel better when they stay active. Walking, yoga, swimming, and other activities can keep you strong and increase your energy. Exercise may reduce nausea and pain and make treatment easier to handle. It also can help relieve stress. Whatever physical activity you choose, be sure to talk to your doctor before you start. Also, if your activity causes you pain or other problems, be sure to let your doctor or nurse know about it.
By the way, my gut feeling is that talking is good for you...because you normally do not talk that much ...So keep letting it out - so that it isnt resting within...and the support group may even be a better source for listening because they not only feel but also experience your thoughts....
Hugs/ M.
A great story (Huff Post)
ReplyDeleteLasheild Myers is able to laugh a little now when she describes the first event in 1997 that changed her life.
"I came home one night from a 16-hour double shift working in a nursing home and the front of my house was on the ground," Myers described.
She needed a minute to let this news sink in, but there in the housing office, her cell phone rang. It was her doctor calling with results from some routine tests. "She said I needed emergency surgery on my breast. I had cancerous cells." When the housing agent asked for an address to reach her at, she gave the hospital's. Her best friend Pat drove her in for her first treatment of a cancer battle that would last several years.
While being treated for breast cancer, Myers found out she also had ovarian cancer. She and her children moved into Pat's two-bedroom apartment while she fought to get her health under control. "I ended up being there for almost two years. Of course I lost my job, so I had no income. I managed to get to public assistance, and got $589 dollars a month in public welfare."
Myers was on her way back from the welfare office one day when she saw a new apartment development being built down the street. She found out that she could be eligible for housing in the new neighborhood through Project H.O.M.E.'s Rowan Homes and filled out an application.
"A couple of months later, they had to come do a home visit. It was all of us, three boys, a girl and me, sharing a room. I just remember she called me on my birthday and asked if I would come visit the apartments."
A woman from Project H.O.M.E. came and picked Myers up. She was still too weak to walk from apartment to apartment, so the woman drove her to each one for her inspection. "She showed me the third apartment and I said, 'this is the one'.
"I just couldn't move; I broke down crying," Myers described. "It was like every door had been closing.
While she gained back her health in an apartment of her own, Myers began to assess what she had been through during the last couple of years. "It gave me a huge learning lesson. Of how to get involved with properties and how to appreciate life. I learned that you can't go by what you see with people." But she still had obstacles to overcome. "My children were at home, they did not miss school, they were clothed, but I had no income."
"I've worked since I was 15 years old. I'm not used to just sitting around. I said, you know, I'm doing what I can volunteering, but I want to get off public assistance, I want to get to a point where I can have a job and be me again."
Her case manager found her a position at Project H.O.M.E. "Now I'm coming up on my ninth year. I just can't state enough about how fortunate I've been -- during the time I was so sick, being on my back and being like, why me, I didn't have to stay on the street, not one night."
Through Project H.O.M.E., Myers was able to take adult education classes and enroll in a first-time homebuyers program. A Place Of Her Own, A Way To Help Others
Myers is working hard to pay her good luck forward. She's going to school part-time to start her own security company and continues to work at Project H.O.M.E. But closest to her heart is her own nonprofit, With-in Strong Hands (W.I.S.H.) Right now, Myers is the nonprofit, working as a catchall advocate and problem-solver for people moving out of shelters into homes, senior citizens and anyone else that needs someone to speak up and look out for them.
"I try to solve problems for them, clean their houses for them free of charge, help with their paperwork," Myers said. Her nonprofit lets her look after others the way she's been looked after over the years.
At this point in her life, she explains, she's unfazed by the obstacles that are thrown her way and takes them only as a learning opportunity."I have to give back."
It is inspiring to hear that people can go through so much and have such a desire to help others in the process, and when it's over. I look at others a little differently know - always been sensitive but slow down more often now to listen more. Yes, I've looked for a support group but hadn't found one yet. I'll check out the one you sent. A friend of Kemi's sis went through extensive treatment and she said that the support group really made a difference. They even passed on great wigs... I think since I really don't know what's ahead, I'm taking it slow and trying learn about the next stage I may be in, and for now that's radiation. It makes me uncomfortable to discuss possible treatment that I may not have to have (whether chemo or mastectomy). I know God will give me the strength to get through those hurdles as I come to them... Thanks for the advice about eating and exercise. It's so tempting to just go with how you feel and tell myself I need rest, when I'm sure pretty soon I'm sure all I will need it just to go back to the gym and work out with Chinya. Yes, I've kinda lost my appetite but not because I'm really sick - I think it's just trying to figure out what kind of lifestyle changes I need to make. That's what I was googling last night - Life Style Changes after Diagnosis... couldn't find much. I guess you find you have new priorities, and try to take better care of yourself and those around you. xx Kule
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